Monday, June 19, 2017



 

Just Keep Swimming
Saturday July 15th at Spire Institute
To benefit the OI Foundation


9-10am  Duck Races  Purchase a ducky ($2-$3each) to race to the finish line for fun prizes.

10-11am Team Challenges* (Minimum pledge $5 per member) Anyone can form a team! Gather your friends, family, teammates, or coworkers and come join the friendly competition. Challenge other teams and try to win the “Lucky Fin”!

11am-1pm Swiminema ($3 per person) Swim, splash, or float while watching “Finding Nemo”

1pm-2pm Kayak Crawl ($2 entry fee) Find out who can get in their kayak first. Participants will face off in pairs to race to their kayak, crawl in, and paddle back! 

2pm-3pm Noodle Races ($1 per person for up to 4 events) Test your skills at nautical noodling in silly races for singles, pairs and teams.

3pm-5pm Swiminema ($3 per person) Swim, splash, or float while watching “Finding Dori”  

Any individual  who registers by July 10th AND raises $75 or more gets a t-shirt and a prize pack.

To register, download and complete the form at katiescourage.com, and then email it to

*Teams must preregister by July 10th

Sunday, April 9, 2017


Ohio.gov is the official website of the State of Ohio.


SUBJECT: National Osteogenesis Imperfecta Awareness Week Proclamation
 
 I became aware of the OI Foundation and OI Awareness week by way of 17 year old Katie Petro who suffers from Qsteogenesis Imperfecta.
As a concerned citizen of this country, and a supporter of the Osteogenesis Imperfecta Foundation,  I would like to request that you, along with mayors, representatives, senators, and governors from across the United States, issue a proclamation declaring MAY 6 - May 13, 2017 as National OI Awareness Week in Ohio.
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease. 
Volunteers are joining the Osteogenesis Imperfecta Foundation, the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta, to promote May 6-May 13,2017 as National OI Awareness Week. These efforts will improve the quality of life for people with osteogenesis imperfecta by increasing the awareness of this rare disease among the public, media, government, and medical communities.
Below is suggested language for the National OI Awareness Week proclamation:
Whereas, Osteogenesis Imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her lifetime;
Whereas, there are different types of OI with a range of severity from mild to life threatening;
Whereas, because there is no cure for OI, treatment focuses on minimizing fractures, the surgical correction of deformity, reducing bone fragility, maximizing mobility and independent function;
Whereas, increased funding for education and research are needed to help find more effective treatments;
Whereas, the Osteogenesis Imperfecta Foundation is declaring May 6-May 13,2017 to be National OI Awareness Week, board members, staff, medical professionals, and volunteers are joining together to focus attention on OI in an effort to increase awareness;
Therefore, I, Governor of the state of Ohio do hereby proclaim May 6-May 13,2017  as National OI Awareness Week in Ohio in support of the Osteogenesis Imperfecta Foundation’s efforts to raise awareness of this rare disorder.
 
Please send a copy of the proclamation directly to the OI Foundation-804 W Diamond Ave, Suite 210- Gaithersburg, MD 20878 (or dcymber@oif.org).

Katie's Courage t-shirts
are now available for $12.
Proceeds benefit the National
OI foundation.