Monday, March 28, 2016
Tuesday, March 15, 2016
Katie is campaiging to make O.I. Awareness Week officially recognized in the state of Ohio and nationwide. You can help by sending this proclimation to your state representiatives.
SELECT ISSUE (drop down option): Requesting Proclamation/Special Letter
You can Copy/Paste the rest! (Also send to John Patterson and anyone else you want from the ohio.gov list)
I became aware of the OI Foundation and OI Awareness week by way of 16 year old Katie Petro who suffers from Qsteogenesis Imperfecta.
As a concerned citizen of this country, and a supporter of the Osteogenesis Imperfecta Foundation, I would like to request that you, along with mayors, representatives, senators, and governors from across the United States, issue a proclamation declaring April 30 - May 7, 2016 as National OI Awareness Week in Ohio.
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.
Volunteers are joining the Osteogenesis Imperfecta Foundation, the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta, to promote April 30 - May 7, 2016 as National OI Awareness Week. These efforts will improve the quality of life for people with osteogenesis imperfecta by increasing the awareness of this rare disease among the public, media, government, and medical communities.
Below is suggested language for the National OI Awareness Week proclamation:
Whereas, Osteogenesis Imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her lifetime;
Whereas, there are different types of OI with a range of severity from mild to life threatening;
Whereas, because there is no cure for OI, treatment focuses on minimizing fractures, the surgical correction of deformity, reducing bone fragility, maximizing mobility and independent function;
Whereas, increased funding for education and research are needed to help find more effective treatments;
Whereas, the Osteogenesis Imperfecta Foundation is declaring April 30 - May 7, 2016 to be National OI Awareness Week, board members, staff, medical professionals, and volunteers are joining together to focus attention on OI in an effort to increase awareness;
Therefore, I, Governor of the state of Ohio do hereby proclaim April 30 - May 7, 2016 as National OI Awareness Week in Ohio in support of the Osteogenesis Imperfecta Foundation’s efforts to raise awareness of this rare disorder.
Please send a copy of the proclamation directly to the OI Foundation-804 W Diamond Ave, Suite 210- Gaithersburg, MD 20878 (or email@example.com).